Medical Missions Foundation

Boi's Story Continues...

For the third time in twelve months, I have just returned home from a trip to Mali, Africa.  This time I was one of 41 team members representing Medical Missions Foundation. The mission: to provide surgery and general healthcare to the people of Ouelessbougou and the surrounding villages.

A very long story short, mission accomplished.  The 40 foot container of medical equipment and supplies arrived, 130 plus surgeries were done and over 1350 patients were treated in the clinics. Many "curve balls" were thrown but our fearless leaders, Josie and Josh Uecker and the team, prevailed with courage, passion and always a sense of humor.

Everyone on the team possessed an invaluable talent and all had an assignment.  My assignment, shoot video and offer any assistance or support to those who asked.  But, the truth be known, my mission was to see Boi and spend as much time as possible with him.  

Tammy and I joined Kevin Hashman and Josh on the advance team arriving in Bamako on Thursday, with the hopes of getting to spend a day and night in the village prior to the team arriving.  That did not work out because of a "curve ball" or in this case, "curve balls". Boi first greeted us, along with the main team, at the airport on Saturday evening in Bamako. He looks great!  He was excited to see us and his other old Kansas City friends, Chris Larson, Dave Kriet, Doug Girod, Jimmy Girod, Cindy and Dennis Wiens, Mary Jane Alex and Kaleena Bauck.  Boi also met the rest of the team, all new friends by the end of the week. With Zina's blessings, Boi boarded the bus wearing his KU Jayhawks ball cap and his MMF nametag.  He was now part of the team and would spend the week with me during the day and the evenings at the compound with the team.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

That first night we all stayed in Bamako.  Boi loved his new cowboy boots from Tammy and started the weeklong task of eating the 15 Culver's cheeseburgers and the 2 dozen wings from the Peanut that I brought to him in Mali.  He also spent an hour in the shower and in the bubble bath. 

Sunday morning the team headed for Ouelessbougou for our 5-day mission.  While the team was hard at work, Boi played with the local kids and visited with his MMF friends as time permitted.  That night, the team loaded the bus and ventured and I mean ventured, to Boi's village, Daganbougou, for a celebration in our honor.  We were greeted by all the people of the village including music and dancers.  Boi lead us with a strut to his compound where more greetings were made including greetings from the Chief Boi, Zina's father, Boi's grandfather.  The Elders of the village also presented the team with a gift.  A garden of fruits and vegetables will be planted in the village in honor of the team, all to be a project of the kids. The evening was to include a meal and more dancing but was cut short due to darkness, a very bad road, and a bus driver with an attitude and a bus with a flat tire, "curve ball". However, all had a fun evening.

 

Doug, Chris and Dave, Boi's Kansas City surgeons, had come to Mali also prepared to perform surgery on Boi if needed.  Their assessment was that while everything is healing very well, another bone graft is needed.  I had previously shared with them that Tammy and I would like for Boi to come to Kansas City for the summer for a visit.  Given this information and the potential risks of infection post surgery, the decision was made to not perform the procedure in Mali but to wait until this summer and do it at KU Med. Boi did make a quick trip to the operating room where Doug, Chris and Peter Gochee MD ventured into a new field of work, the making of a dental mold.  It was brought back to Kansas City and dentures will be made for Boi. 

During the week, Boi and I made 2 more trips to the village.  The first trip was with Tom Spiegel MD, Lyn Shaw RN, Mary Jane, Jim and Mark Schlotzahauer. Tom, Lyn and MJ ran a clinic where that day, half a day, 113 patients were treated and given medications.  Mark with the help of several villagers, assembled and "raised" the swing set that I shipped over on the container. Boi and the other kids waited patiently for hours for the concrete to dry. After Boi had the inaugural trip down the slide and time on the swing, we were open for business.  I have never seen so many kids on one swing set in my life!

The second day in the village was Tom, Jean Seem RN and MJ.  More clinics and in half a day over 140 patients consulted and given medications. That day Tom also went to the school.  2 classrooms, over 80 kids only going through the second grade.  All of the kids received a consult and vitamins.  Tom spoke to the groups about the hygiene issues that concerned Tammy and me the most when we were there in July.  He did an excellent job of talking to the kids on their level about where and where not to "pee and poop", hand washing, what water to drink and not to drink, mosquitos, malaria and germs in general. Cindy, Josie and her friend Mary had made illustrated posters addressing these issues, which Tom used.  Additional copies where posted in the school and the other MMF work locations.  

While in Mali, I also met with the Chief and the Elders of the village several times regarding the building of the school.  The land has been donated or determined by the Chief and has been graded.  I have in hand a letter from the Ministry of Education, blueprints for the building and a detailed budget for the materials.  The village members have agreed to provide the labor and the director of the existing school is involved.  Now that this trip is behind me, I will go back to marketing Boi's Story and raising funds for this project.  The village is so excited that they will have additional educational opportunities for the kids.

On that note, when I presented Zina with a copy of the book, he looked through several pages and just closed the book.  Cindy and I could tell he was close to tears, something that would not have been appropriate since his peers surrounded him.  I did get that look of thanks from him.  I know it well, have seen it many times. Boi on the other hand looked at every page very carefully. He studied the OR photos which I found interesting as he has never seen them before.  There were giggles when he looked at the photos of himself and the pictures of his buddies in the village.

In many ways, it seemed like a lifetime but before I knew it, our 5 days in Ouelessbougou were over.  A week of very hard work by all. Many many patients treated, skills and thoughts shared with the local medical staff, old friendships taken to a new level, new friendships made, nights sleeping on "cots" under mosquito nets, days of using an out house with only a hole in the ground, no running water, very little power, some rice and power bars, snacks and GI problems for most. The cases of beer and wine that were shipped were consumed; the smiles and laughs were constant.  The complaints were non-existent. All in daily temperatures that were in the high 90's.  Dirt and dust, thick and everywhere. An A+ team to say the least.  

Thursday afternoon, a little later than planned, "curve ball", the team including Boi headed back to Bamako to the hotel for showers, a cold beverage and food. That night the group had dinner in celebration of a successful mission and the three team member birthdays of the week.  It was also Boi's last night with us.  Dr. Omar came in for dinner so I bought us some more time with Boi by asking Dr. Omar to take Boi home after dinner.  Boi sat at the table next to Tammy with a plate of food piled high. He proudly cut all of his food himself with a knife and fork and ate every morsel.  He spent time before and after dinner sitting with friends.  By this time Boi was friends and loved by all.  Soon the evening was over an it was time for Tammy and me to say our good byes to Boi.  He had been told before that he was just coming to dinner and would be going home that night but when he was told it was time, the tears began.  There were lots of tears and lots of hugs and kisses.  Then Dr. Omar took Boi's hand and they walked away.  I will never forget the image, it is as clear as daylight in my mind.  Dr. Omar and Boi walking from us holding hands, Boi turned his head towards us one last time.  The tears were running down his cheeks, once again.  Just like that first time in the clinic in Ouelessbougou one year ago when Tammy and I first met him.  And just like that morning nine months ago, the morning of his first surgery, as he can down my stairs and again as we headed down St. Line Road towards KU Med.  

On our last night in Mali, Josie told the group a story that Mark had shared with her earlier.  To paraphrase, when his daughter returned from her first trip to Africa she said to him, "Dad, it is just something that I cannot explain or describe". While I have tried, I agree.  It simply cannot be done. Much like I cannot explain or describe the bond that Tammy, Boi and I have, and will always have.

Siraba

 

***In the next few days, please go to www.mmfworld.org to see more pictures of the MMF Mali mission.  You can also support the building of the school in Boi's village by purchasing Boi's Story through the website.

Boi will be in Kansas City this summer. We are planning on having a book signing.  I would love for you all to be there, more information to follow.

 

Boi is Home

Tonight when Tammy and I came through immigration the officer asked, “Africa, have you been to any remote villages?”  “Well, kind of remote.”  “Were there any chickens or goats in the village?”  “They were around the village.”  In truth, while Daganbugu is only 15 kilometers from Ouelessebougou, it is  remote, an hour plus drive over very bad roads.  And as far as the goats and chickens, they are outside of the village, in the village and in the dwellings.

So, now I sit in my very comfortable home having just had a steak, potato, great glass of wine and worry, did Boi get enough rice today?  Did he get any  protein, chicken, goat or peanuts?  I do not have  to worry about him having fun with his “posse” or if he is very much loved by everyone in the village.

The village was filled with anticipation to see Boi.  He seemed very cautious at first, just trying to take it all in.  There were uncles, aunts, grandma, grandpa and all of the kids, some with excitement, many hugs from mom, with disbelief.  It was clear right away that Zina and his wife had made a huge effort  for the homecoming.  That night there was a party with drums, dancers and singing.  A wonderful celebration attended by all of Daganbugu and many from other villages.  At the end of our first day, mixed emotions.  Boi is home, everyone loves him.  Boi is home, where can he go from here?

The next day, more celebrating.  Tammy and I were presented with a goat,  several chickens and invited to meet with the Chief of the village, Zina’s dad, for him to give us our Bambaran names and his thanks. Tammy’s name is Hawa, “Eve, Mother of the Prophets.”  My name is Siraba, Sira, “Mother of all Women” and ba, “a big presence.” After this, as we walked through the village, people addressed us by these names.  A very big honor to be given names by the Chief.  The feast of goat and lamb was cooked, the women performed a traditional dance and Boi was back with his friends and family.  He was back to eating  from a pot,  bathing in a bucket and sleeping on the floor.  All fine with him, he is home.  The bikes were put together and the toys slowly came out. The other children became more comfortable with Tammy and me, the women continued to work and the men drank tea and talked and talked and talked. 

The village really is beautiful, very green as this is the rainy season.  There is no running water but a new well. There are a few “out houses” just outside of the village but there is also a small place to  “pee” and wash with a basin within the compound which is concerning. There is no power.  There is a school, a small one, only to 2^nd grade, also concerning.  The crops are planted and seem to be doing well; it has been raining a lot.  And most importantly it is evident, there are many smiles, respect and love for each  other in the village. 

So, Boi is happy and home.  After seeing where he comes from it is unbelievable the way he adjusted to being here.

After 2 nights and 3 days in the village, Tammy and I are home too.  We did fine in the village, we felt very welcomed and look forward to going back. This trip for us was a continuation of the personal relationship that we have with Boi. The stories are endless and most impossible to share.  It is with mixed emotions that we left Boi.  We know he is safe and happy.  We do have worries though.  We worry about his nutrition.  We have talked to Zina and left him with funds for extra food.  We worry about his education.  We very much want Boi to have the opportunity for an education.  We have arranged for a tutor and he will be participating in the “One Laptop for every Child” workshop in Ouelessebougou.  But, the village needs a middle school.  The village needs to learn about the dangers of contaminated  water, too many children are dying. 

Tammy and I have a plan.  Boi’s story is not over…

Abigail  “Siraba”                     See Boi homecoming pictures:

http://www.youtube.com/watch?v=ip0TTeRZpWk

World's Away

I really am at a loss for words.  This experience is way beyond our wildest dreams.  When we leave the village and can gather our thoughts and emotions, we will do our best to share this part of Boi's story.  Another thing I do know, Boi's village is world's away.  Abigail

Safe Arrival in Mali

We have arrived in Mali.  It was a long trip but Boi is a great traveler.  We were greeted by our driver, translator and Zina sporting his MMF Jeff Montgomery golf shirt, a KC Royals hat and his huge smile.  Of the 7 bags that were checked, 5 arrived.  The important stuff made it.  Boi's toys, bikes, most of his clothes and Tammy's bag.  I do not have any clothes but also have the important stuff I packed, the cooler and the corkscrew.  Tomorrow morning we will leave for the village.  I told Zina that I would like to stop at the Friday market to do some shopping for his family and of course to fill my cooler.  So far on the list are beverages for Tammy and me and for Zina's family, food, weed killer and a few goats and lambs.  We do have 2 vehicles but I am wondering how will the animals get from the market to the village?"

Up, Up and Away

Mike, Paul, Matt, Katie, Brooke and myself all gathered at the airport this afternoon to say our good-byes to Boi, Abby and Tammy. Excitement was written all over Boi's face to be going on the airplane with his Abby and Tammy.  We would have loved to have crawled into one of the many suitcases, to go along to Daganbougou, Mali, West Africa. After Boi had one last  hamburger they were off.  Our love and prayers go with them and we await the news of their safe arrival!  ~Cindy Wiens~

“Tammy, Abby and Boi go bye bye”

That is what Boi has been saying for a few days.  He knows we are going on an airplane and going to Daganbugu, his village.  He knows that all of his toys including his two bikes are packed.  He knows that all of his clothes are packed and his backpack is ready for the airplane including his “laptop computer”. He has carefully looked through the photo album with hundreds of pictures that he will be taking home. He knows that the tumor is gone and he knows what he looks like now.  He knows all that he has gone through medically and he also knows all the great fun that he has had.  He knows what he likes to eat, what he likes to play and he knows enough English to tell you.  But what he does not know and what I know and am sure of, he is a true miracle.  I know that it was fate that brought Boi to the clinic in Ouelessebougou in January.  I know what all needed to be done to get Boi here.  I know that medically Boi was like nothing the doctors had ever seen before.  I know that many people have given their time, talents and hearts to help Boi.  And I know that he is healthy, happy and alive.  A true miracle.  What he does not know is what he has brought to my life, to Tammy’s life and to all of our lives. A huge gift that we will never be able to fully explain to Boi.   Another thing I do know, Boi is leaving Kansas City but he is not leaving me.  He will be in my heart and in my life for as long as I live. 

So, today we will get in the car and head north again.  Not to KU Med but to the Kansas City Airport.  We will stop at the Peanut for one last cheeseburger and an order of wings.  I know that Boi’s mom, dad, brothers, sister, grandpa and the whole village is anxiously waiting for Boi to come home.  In a few hours we will be on our way.  The tears will be rolling down cheeks again but this time they will not be Boi's tears, they will be mine.

---

Get the

Here today and gone to Mali (tomorrow)!!

Today Boi had a Summer School experience at Ravenwood Elementary School, where Brooke teaches.  He enjoyed doing a puzzle with the kids, walking them to the cafeteria, doing math problems on the sidewalk with chalk, enjoying the playground, and the favorite "the computer". Boi catches on so quickly to new things and embraces everything whole heartedly.   It's hard to believe that tomorrow he will be winging his way back to Mali, a brand new healthy little boy!  Although we are sad to see him leave we're so excited for him to begin his new life without the "bump".  This whole experience has been one big life changing, miracle!   ~Cindy Wiens~

Boi at the lake

  After showing a lot of excitement about seeing personal watercraft on TV, Boi had the opportunity to experience the thrill first-hand Monday.  He also learned some new words: "Lake, little boat, big boat, tube, paddle" and others.  With the help of Doug Hagen's children, Chris and Grace Anne, he was able to enjoy all the activities that brought a smile to Zina's face a few weeks ago.

In a whirlwind trip to Pomona Lake, Boi rode the wave runner with Chris (Boi at the controls doing 50 mph), went stand-up-paddling with Doug and rode in the boat and on the tube with Grace Anne.  We had a beautiful sunny afternoon and the only disappointment was failing to capture Boi's laughter on videotape (not for lack of trying).  His smile, as usual, said it all.

Doug Hagen

Boi is very busy...

Yesterday, Boi started his day visiting Dr. John Faerber.  The thought was to have some dentures made for Boi but John decided it would be best to let Boi's mouth heal a little more.  He will be sending with the MMF team to Mali in January, the supplies to make an imprint for Boi and the dentures will be made then.  Thank you Dr. Faerber! 

Boi's day ended, kinda, with a last house call from Doug Girod.  We are still a "go" as Doug reall likes the way things are healing.  In between those visits, Boi spent the day with Doug Hagen and his kids, Chris and Grace at their lake house.  Boi has not stopped talking about it...more on that to follow from Doug. 

Today is another crazy busy day.  Boi is going with Cindy to visit Brooke's summer school class.  Elizabeth and the NBC Action News camera crew will be coming back and I am trying to assemble some sort of order around here.  With not much luck, by the way!

Boi at The Beirne Cement Pond

With Boi leaving in a few days he has pulled out all the stops to see and do all the things he possibly can.  He has recently learned how to swim (more like float on a tube), and splashing has no rule in his mind!  With a squirt gun in hand and his new blow up he's ready to get anyone who gets in his way, or the dog who just happened who walk by.  Boi has become more interested in sports while here including baseball and basketball.  Whether its going to watch a baseball game or shooting baskets in the driveway.  And we can't forget the bike and battery charged car that he has become a master at.  With all this stuff happening you would think it would tire him down, but not even close!  Going to sleep at 11 and waking up at 7 is now starting to be his regular routine. He has even started to play the wii.  Which of course, he loves!  Knowing he only has 2-3 days before he leaves, he is enjoying every moment, every second becoming a moment and in this way recovering the lost childhood spent in the hospital with his tumor.  Boi has in these 3 months spent here an entire childhood that a normal child should have.  Looking back to all this time spent together we all got to love Boi for his "owo", all his "no's" and can't forget "ha's".  For all the people who have looked over the well being of this wonderful soul we owe our gratitude and thank you for his happiness.  A smile is worth more than a thousand promises.  Thank you for our own smiles!

Katie Beirne and Emily Matei      

What fireworks ordinance?

Well, Boi will be missing the 4th of July so we thought we would "blow some stuff up" here.  The boys have already done their shopping, so tonight we introduced Boi to the world of fireworks.

He loved the cars that ran down the patio and really loved the "fountain" fireworks.  While we were in violation of all ordinances, we did refrain from the big stuff.  I don't have time to burn the house down.  But I mean really, what are they going to do?  Haul and 8 year old kid from Africa that has just had a giant tumor removed from his face downtown?  All worth the many giggles and smile on his face!

Abigail 

Boi's Weekend

Boi has had a fun weekend, he has been in such a great mood!  And his eating, like nothing I have ever seen before.  The usual favorites, which he now requests in English and can warm in the microwave if needed on his own.  Cheeseburgers, pizza, chicken wings... 

He has had take out many times from The Peanut but made his first visit to this lovely eating establishment on Main street a few days ago.  A cheeseburger and 1/2 a dozen wings, no problem. 

He continues to "earn his keep" around here by helping with many chores, his favorite, going to the car wash.  My car has never been so clean!  He has been outside playing, sidewalk chalk, bike riding, hitting golf balls and last night for the first time, we caught fireflies!  He wanted to squish them at first but figured out it was more fun to put them in a bug box and watch them light up.  Weekends are great for sports on TV.  He also makes these requests in English, basketball, baseball, golf and his current favorite, car racing.  While the good times continue to roll at the Hayo compound, his Tammy comes home tonight and he will be very excited to see her!   

Last trip to KU Med

Today Boi and I headed north on State Line Road as I have done a billion times before.  However, this time it was for Boi's last visit at KU Med.  He was not excited at all about going but soon realized that I was telling him the truth.  Dr. Girod just wanted to take a look and some pictures.  Doug is very happy with the way Boi is healing and it is even possible that Boi will not need any surgery when the Medical Missions Foundation team goes to Mali in January.  Boi has been asking nightly for ear drops and for me to look at his ear with his personal otoscope.  I have been out of drops for a while but I do accommodate the exam request.  Little does he know, I have no clue as to what I am looking at!  Doug did want to take a look at Boi's ear through the microscope but I made a promise to Boi.  Nothing scary.  So, I was in the chair first with Boi on my lap watching carefully, Doug looked through the microscope and removed a SMALL piece of wax from my ear.  With Boi still on my lap, Doug did the same to Boi and removed a HUGE piece of wax from his ear.  Boi does have an ear infection and is back on drops and amoxicillin but we still have the green light.  As Doug said a long time ago, Boi will be "bullet proof" when we send him home.  And that he is.  Tammy, Boi and I leave for Mali July 2nd.

Abby 

Road Trip

Yesterday, Boi and I made a road trip north to the Young Compound in Chillicothe. 

We were there to visit my brother Bill, his wife Inger and my niece and nephews, Johnson, Margo, Gunnar and Emmett. 

The Young Compound is a giant kid wonderland as every toy ever made,they have! 

The kids welcomed Boi as if he were family and Boi had as much fun as I have seen him have since he has been here. 

Every riding toy from the garage was out and in use, bubble makers, and they even had a water fight with the hose, balloons, guns and filled the little baby pool!

They  played with many of the inside toys after dark, chased the dogs and were even allowed to jump on Inger and Bill's bed! 

The only fighting among the kids was who gets to sleep with Boi!  The bedtime began with Emmett, Boi and me in one bed but Emmett wondered off sometime so it was just Boi and me again.  Not in a hospital bed this time, in a large very "comfy" bed after a day of great fun! 

Oh yeah, and Young family, welcome to the village!  Abby

Back to 100%

As you all know, we had great news after Boi's surgery on Wednesday.  As Jane said, "nothing short of a miracle" and that it truly is!  He did have to spend the night at KU Wednesday night. This was the first time that after surgery he was awake right away and his dad was not there.  It was pretty clear to me early on that he was not going to want to be alone.  With a visit from Tammy and Brooke I was able to make a trip home and make arrangements to "farm out" the boys as Mike was out of town. So, it was me and Boi in that comfy hospital bed all night, well almost all night....Boi woke up at 12:45am hungry and there was not a morsel of food in the unit. So, I drove home, made mac and cheese and some tator tots and of course Boi was not hungry when I returned! Promptly at 6:30am the ENT residents arrived led by my old friend Dougie, now know as Dr. Doug Cowen and we were given the "green light" to go home.  They did require a suction machine to come home with us, and thank you to Doug for coming to the Hayo Compound later that night.  I could not have done it myself, Boi hates it and is such a fighter.

 

Today we went to KU to get the trach out.  Boi is so smart.  He made sure that I gave him something to eat before we left, a sure sign, no surgery.  He made a sigh of relief when we passed the elevators that go to surgery and PICU and continued on to the ENT clinic.  He was not happy about being there but with some encouragement pulled out the trach himself.  The stitches will come out tonight when he is asleep.  He wanted to stop in the the cafeteria for lunch and then walked out with a huge smile and a strut of pride!

He misses his Tammy, as she too is out of town. I have tried to explain, all I can say is, she is on an airplane, with my arm out, like I am a plane.  Boi has had a great day, I think he must know...All Is Good!!  He has been riding his bike, playing with the boys, brushing his teeth and "whooshing"as directed and as I write this, his is microwaving his 5th piece of pizza!

I have been told we can start making travel arrangements to take him home.  What a mix of emotions.  I am so excited for him.  He is healthy, looks great and he is alive.  He soon will be with his mom, dad, brothers and sister and everyone else in his "Mali Village".  But selfishly, it is also a heartbreaker to me, I will be sad to see him go.  Little does he know, he has brought more to my life, and I am sure many others, than he can possibly imagine.

It looks like Tammy and I will be taking Boi home 4th of July weekend.  What a great way to spend this holiday, dancing in the village with grandpa....

Nothing Short of a Miracle

When Boi went into surgery yesterday morning they were expecting a long day and no good remaining tissue.  After a short surgery the news is outstanding.  They removed a small amount of tissue that had died, but enough healing had taken place to allow him to eat normally.  They are keeping an eye on a small hole in the roof of his mouth but expect it to continue to heal.  It might be necessary to make some minor revisions prior to his departure or they can possibly wait until the Medical Missions team returns to Mali in January 2009.  Boi will be out of the hospital today and back in the Hayo compound.  In the best case scenario, Boi should be able to return home in 2-3 weeks.

Gardening and the Plan...

Boi is back to 100%.  He is his feisty self and eating like crazy.  He is wandering from his love of eggs, now tater tots, cheeseburgers and chicken wings!  He is riding his bike, playing video games and has been very busy with the kids at the Hayo and Beirne compounds.  He has mastered washing the car at the car wash with Mike, has convinced everyone and anyone to take him to the park and has even met some more fellow "Malians" at Katie's soccer game.  Today he lent a helpful hand to Edward at the Kansas City Academy's garden.

Boi will be returning to surgery this Wednesday for revision of his flap to the roof of his mouth.  This has been technically challenging  to his surgeons because of his tendency to clot which is very unusual.  It will likely be another long procedure with either a free flap or a pedicle flap.  We hope and pray it will be successful and have the utmost faith in our surgical team.  "Eat your Wheaties guys".

Corona's and Car Racing

Friday night, Mike, Michael, Boi and I ventured deep into Wyandotte County with our first stop at the Corona Grill for beer and chips and a visit with our friend Darren Mark.  Boi and I wandered around the Legends and managed to find some very cool dinosaurs!  Our next and last stop was Lakeside Speedway.  Boi really enjoyed watching the NASCAR race on TV last weekend so I thought, why not?  Well, Boi's eyes were the size of saucers and his smile was even bigger!  He loved watching the cars battle and the mud fly!  It's funny, as we were walking in, a man stopped and made Boi a balloon motorcycle.  As we were walking out, the lady in the concession stand gave him a car. Without exchanging any words, even strangers know, Boi is a very special little boy...

Improvement to the Mind and Body

Boi continues to improve, is eating well and hopefully putting some weight back on.  Through Kaleena from the KU PICU, he has a new XO computer from the One Laptop per Child, Give One Get One program.  My understanding is these computers run on Linux which allows for the ongoing development of free, downloadable applications. The computers and the program were developed to target children in impoverished countries.  He is playing with it, not sure how, I could not even figure out how to open the computer itself!  Yesterday and today, Boi and I both had "maintenance" as I like to call it.  Boi has a new very handsome haircut.  Thank you Jerry!  He went with me to get a manicure, don't anyone panic, I did not subject him to one!  But at his request Carolyn painted one of his nails red!!

A Relaxing Weekend

Boi was released from KU Med on Friday.  While he is still "dragging" a little, he is doing well.  We had a fun weekend with visitors and a BBQ at Tammy's.  Boi loves being with all the kids.  This is a nice distraction, as I know he misses Zina.  Boi enjoyed another American pastime, he loved watching NASCAR with me on Sunday. Many giggles and oo's and ah's.  We hope to know soon what is next for Boi medically, hopefully we will get some "off" time just to keep having fun!

Abigail

Farewell from Zina

Following below is a brief summary of Zina's gratitude as told to Moussa, a translator and part of the Kansas City "village".  Zina is returning to Mali to plant his crops and care for his family.  Moussa would like to convey that the translation below does not fully capture the sincerity and essence of Zina's words:

To Abby and Tammy, words are not enough to show my gratitude and thankfulness for all you have done and continue to do for Boi and myself. I do thank all the doctors; (he listed them all by names) for such a wonder you have done for my son. I talked to an acquaintance of mine back in Mali; he is a physician, and when I told him all you have done for Boi, he does not believe it. He thinks it's impossible. To me, if someone like that; a trusted physician - healer cannot believe it; it just shows me the magnificence of what you all accomplished. I thank all the people that I have come across, who have shown love and acceptance to Boi and myself. Being from a rural area, I really have no concept of how much money the surgery cost; but I know it has to have been a lot.  I do thank you all very much for showing us such generosity and healing to my son.

In Mali, we have a saying that when you meet a stranger and visit with him; upon departure from each other you have to ask for forgiveness and wish him well. That said, I do want to offer my apologies to anyone I might have offended.  Being from a different culture, I am sure I did offend some of you; please accept my apologies. 

"I leave Kansas City, knowing that my son is in good hands and again thank you."  "I wish you all well."

Zina

The Long Weekend

And that it was, for Boi and Zina.  Boi spent his weekend in the KU PICU asleep.  Yesterday, they took him to the OR to "wake him up".  He is congested and has a sore throat but I know will be back to his usual self in a few days.  Zina on the other hand had a very exciting weekend.  He spent some time with Moussa and his family.  It is always nice for him just to "hang out" with friends that speak Bamaran.  On Sunday, he went with Doug Hagen and his kids to their lake house.  Zina had a great time riding in the boat and the wave runner and even took several rides on the tube behind the boat.  The Hagen's took this on without a translator, must have been an adventure for all.  When I asked Doug if Zina knew how to swim he said, "yes, we figured that out by trial and error!"  Another change of plans, with the time table not set for Boi, Zina will be going back to Mali tomorrow. He needs to care for his family and his fields are growing weeds.  He will be going home with suitcases full of gifts of clothes, gifts for his family, a solar powered battery charger (they use a car battery for power at night) and money to replace the 2 ox that he sold to pay for Boi's medical care before we came.  With the ox he will be able to plow his fields and plant his crops.  So, he is entrusting Boi's care to us, the Kansas City village, and Tammy and I have promised to send him home healthy and spoiled rotten!

Abigail

Resting Comfortably in PICU

After 8 more hours in the operating room on Wednesday, Boi is resting comfortably in PICU.  Part of the tissue flap to his soft palate is not healing well because he seems to have a clotting abnormality in his blood making the blood flow to the tissue flap not good.  The new flap also is not taking well so they are investigating a new plan to cover that space.  Boi is doing well and all of the other reconstructive work is healing great.  He will need more surgery though to correct this problem. We are not sure yet when this will be scheduled but plan to keep him here as long as we need to be sure he is well healed.

The Flap, Trust and Bravery

Yesterday Boi had surgery at KU Med.  I think the falling "free flap" was bugging him more than the tumor. Or he has so much trust in all of us that he knew everything would be OK.  He showed very little fear and was so brave!! Maybe it was a little of all, the flap, trust and bravery.  I packed a little bag of toys for him to bring to KU, he wanted to leave it here.  He ran to the car and walked into KU like he owned the place. 

We breezed through registration and went right to pre-op where we were greeted by the same crew. He had a few tears while drinking the "magic juice" Ron gave him, it does not taste good, but was soon drowsy and ready to go to the OR.  This time, no trach, and a straight forward intubation.  Doug, Chris, and David, with many other helping hands, proceeded with the free flap procedure and 10 hours later, Boi was on his way to the PICU.  While they were wanting him not to come back, they are so happy to be the ones to care for him.  Today, he is doing well, resting and will stay there until some time next week.  So, again, a heartfelt thank you to all the villagers at KU Medical Center!!  Abigail

View Face of Bravery

Medical Missions Foundation Board member, Elizabeth Alex, aired an exclusive story on NBC Action News on May 14th called Face of Bravery.  You can view the story on You Tube by going to www.youtube.com/mmfworld.

A Celebration and a Change of Plans

Sunday evening at the Hayo Compound was a blast!  It was a beautiful day and the compound was full of villagers. The theme changed from a going away party to a celebration of all the good things that have happened for Boi and Zina and all of the new wonderful friendships that we all have made throughout this journey.  The food, wow, the food!  Cindy, Mary Alice, Sakou and Moussa all brought "peanut butter gravy", it was fabulous!  Sakou and his friends taught us how to marinate the kabobs "Mali style" and they were great too.  Mary Jane made mango salsa, also a hit.  Zina made "special gun powder" tea just like he does at home.  We listened to Mali music while Boi played the drums and "nagoni".   We also celebrated Boi's upcoming birthday with a huge cake covered with his favorite things, cars.

As far as the change of plans...The "free flap" in Boi's mouth is not healing properly.  To quote Doug Girog, "we want him to go home bullet proof" so Boi will go back to KU Med Tuesday for surgery.  Drs. Girod,   Kriet, Larson and Torline are all scheduled to be there.  This is the procedure that requires microscopic, vascular anastamoses, which is tedious and time consuming.  They are projecting a 6-10 hour case.  Boi will go back to PICU for a week or so and will need to stay here for 3 more weeks.  So, looking at the big picture, the tumor is gone and Boi has the best care in the world, my opinion, available to him.  This is just a bump in the road.  And when he does go home, he will be "bullet proof".  Abigail

A House Call and Worlds of Fun

This morning Dr. David Kriet came by to look at Boi.  His visit even incuded a ride in his Porsche!!  In the afternoon, Tammy and I took Zina and all of the kids to Worlds of Fun.  Zina rode the Boomerang and the Finish Flame.  He was in line for the Mamba but escaped just before boarding.  He was shaking his head most of the way out and asked Dennis later tonight, what happens if the power goes out and you are hanging upside down?  Good point, it happens!  Boi, spent the whole time at Camp Snoopy.  We rode the Wacky Worm, many times and rode all the other rides.  He on the other hand, cried the whole way out, wanting to know why he could not ride the big roller coasters.

Abigail

Congressional Forum, fun at the TV station

Boi, Zina, Dennis, Cindy, Elizabeth, Jane and I were the guests of Stephene and Congressman Moore today at the Congressional Forum in Kansas City, Kansas.  Stephene gave a very nice talk about Medical Missions Foundation, which of course included Boi's story.  From there we went by the KSHB News Station for a tour.  Gary was there too with Stormy, Boi and Zina were quite impressed with the station and Stormy's tricks!  It is finally reasonably warm for Boi and Zina, so the rest of the day will be spent outside.

Abigail

Our Contrasting Worlds

The small rural village of Daganbougou, Mali, to Kansas City, the heart of America, are worlds apart. Vastly different customs, cultures and world views.  Zina and Boi’s trip to the US is a dream come true for literally every Malian.  Everyone holds the U.S. up as the greatest country, the most developed country, the richest, the best place to visit. Zina and Boi have now seen it with their own eyes and experienced it.  Zina confirms that the stories he has heard all his life of this great country are really true!  This is the greatest country. However, the contrasts are striking.  Here are some cultural encounters the Doumbia’s have noticed.

• In Mali, food is prepared and then served in one large common bowl/pan with every one sharing equally together, eating out of the same bowl with their right hand. Here we each need to have our own plate, silverware and our own potions! If anyone is around when food is being served they are always invited to eat!
• In Zina’s village, everything in the hut has practical useful beneficial value that is helping in the struggle of day to day life.  Here the houses are filled with things that just sit, on shelves, on tables on the floor, never touched or used Things that are just for the eyes to look at with no apparent “practical” value for helping in the struggle of life.  Just a lot of “nothings”.
• In the Malian village there is one outside bathroom for the extended family.  Here there are 3-4 bathrooms in each house, while only a couple people living in the house.  Why do American’s need so many bathrooms?
• Why in America do we keep dogs in the house with us?  And why in the bedrooms? In Mali dogs are left to run. Why do we leash our dogs and walk them?
• For Zina and Boi, America has been the coldest place they have ever been! They have never been so cold.  Even tap water is too cold to drink.  But why do American’s always put ice cubes in the drinking water to make it even colder?
• In Mali, coffee is with tons of sugar and NEVER milk.  How can American’s drink coffee with no sugar? (Zina used 12 packets of sugar in his small coffee)
• While watching traffic, most cars only have one person in them.  It seems the husband and wife never leave the house in the same car. Why can’t American husbands and wife’s ride in the same car?
• The extended “Boi family/village” in Kansas City treat Boi like their own child. Why? It is difficult for them to understand such kindness. But they truly appreciate it! 
• In Malian culture you ALWAYS acknowledge people when you enter a room.  You greet them and in most cases go around the room and shake their hands. While in the waiting room at KU Medical center, people would enter the room and never acknowledge us, never greet us.  People come and go and never acknowledge us! Why? 
• In Malian culture, when you visit a new place you are assigned a host family.  While you are there and when ever you return that family always remains your host family. To move to another host family is strange and culturally unacceptable, even unthinkable.  Why do American’s always keep changing our host family?
• As subsistence farmers in Mali, only a few kids in the family get to go to school.  Why do all American kids get to go off to school each day?
• In Mali, as a third world country, the struggle is for development.  The mindset and world view is in the context of a constant struggle to “keep building, keep improving”  one life, one neighborhood, the community and country.  Here in America the “development is done.  The country is all built, developed, the struggle of development is over.  We have achieved it.  Now we can rest, look at it, enjoy it!”
• In Mali, you drink water AFTER the meal and you drink all you need.  Why do American’s have to keep sipping little bits of water, with ice cubes in it, between meals?
• IN Mali work is accomplished with their hands.  It seems Americans have machines to do all their work.  Don’t Americans want to work with their hands?  While in the lobby of KU Medical Center, the front door kept opening for people and then would close after them.  No one ever had to touch it!  The door just knew when to open!!  We don’t even open our own doors ourselves … machines do it?
• In Mali, ONLY men wear pants. In Mali ONLY teenagers and not yet married girls wear pants.  If a Malian women is wearing pants she is “without direction” and no authority to guide her.  Why in America do men and women all wear pants?
• Why do men in America wear earrings?
• Sitting in the waiting room at KU, people kept coming by and purchasing drinks and food from the vending machines.  Zina’s curiosity finally was too much. He asked me about it.  People put in what is almost the equivalent of a day’s wage in Mali and all they get out is a small bottle of Coke? Why not just drink free water on the other side of the room? And the vending machine just keeps “eating” people’s money and “never fills up”! It’s like it’s always hungry.  Why?  Where is all this money going?
• These issue were discussed how different cultures are, neither being wrong but just different.  This was truly an eye opening, amazing, life changing experience for Boi and Zina!!!
• While there are cultural contrasts, Zina and Boi are appreciative and thankful for the generosity and hospitality shown to them.  While they may not express it in ways we would recognize they are extremely thankful to their new “village”. 

Dennis and Cindy Wiens

A Final Day with the Doctors

Another first for Boi and Zina today, a trip to the dentist!  They both had their teeth cleaned and got the "run down" on the importance of oral hygiene. Thank you Dr. Nora Frandsen for the donation of your time and talents, welcome to the village!  Boi had his final CT scan at KU Med this morning, Boi's last trip to the hospital.  They are coming back to the Hayo compound tonight, just a few more days in Kansas City, hard to believe.

The Fun Continues...

Today at the Girod house, we ventured to Bonner Springs to Moon Marble Company.  As we jumped out of our car a coal train went whizzing by just steps away - it was very exciting!  Inside Moon Marble we filled two tubes of marbles - one for Boi and one for Zina.  After that we went to Oak Park Mall to ride the carousel - which was a big hit with with both of them.  Moussa Ba was able to join us for dinner tonight - it was fabulous to ask questions with an interpreter there and learn about Zina's life in Mali and to hear what he thinks of Kansas.  I asked him if he was happy with the way the operation turned out and he said that he never imagined they could have such a good result.  He couldn't believe that it was possible.   Tomorrow we are invited to Moussa's home for dinner!

Tune in to Boi's Story

Medical Missions Foundation Board member, Elizabeth Alex, will be airing an exclusive story on NBC Action News at 10 pm, Wed. May 14th on Channel 13 in the Greater Kansas City area.  Please tune in and after the story is aired, log on to www.nbcactionnews.com to view the story online.  Additional information and pictures will also be posted.

Burgers and a Bald Eagle

Today was a terrific first full day at the Girod's.  After a breakfast of scrambled eggs, Boi met the two neighbor boys and had a great time playing on their swing set and riding bikes.  Zina was able to chat with the neighbors who speak French.  We had lunch at Tanners - hot wings and burgers for all - and then headed to Deanna Rose Family Farmstead.  We went on a hayride, Boi rode a pony and we fed lots of goats and ducks.  Boi and Zina saw their first Bald Eagle.  They seemed to really enjoy seeing all the animals.  After a busy afternoon, we retreated back to the house for a nice family dinner where Zina helped with our pronunciation of the Bambara language (from the phrase book).  He seemed to enjoy our efforts!  We are looking forward to the rest of our week together.

Jimmy Girod

A Day at School

After helping with translation for the last footage for the documentary on Boi we took Boi and Zina to our home in North Kansas City.  After three helpings of peanut butter gravy and rice with Malian balaphone music playing, and a round of tea we were ready to head to school.  In Daganbougou, Mali where Boi lives, his school only goes up to third grade.  Class rooms are very simple and one teacher may have up to 75 children in one room. Occasionally you are required to bring your own stool to class to have a seat. Often times slates and chalk are used for writing tablets. There are no cafeterias, computers, bathrooms, or playground equipment .   In fact there is no electricity or running water in their village.  After you pass 3rd grade you are either sent away to a bigger town for further education or you work hard in the fields helping your family make a living as a subsistence farmer.  Boi has had several opportunities to visit schools here in Kansas City and yesterday he got to visit Ravenwood Elementary School where Brooke teaches.  You could just tell that he was thoroughly enjoying writing his name, painting a computerized picture in the computer lab, recess, and the highlight was watching the kids all board the big yellow school busses and waving good bye to them as they left!  Zina asked a lot of questions about the school.  He noticed that most of the teachers were women  whereas in his country most teachers are men.  He also was very interested in the fact that Special Ed. kids were a part of school and playing on the playground with all the rest of the kids.  That wouldn't happen in his country where handicapped or special needs kids are kept hidden away behind the walls of their compound.

From school we went to Penguin Park where Boi enjoyed the large statue animals, swings, slides, motorcycle on a spring, and absolutely loved the merry go round.  He just wasn't sure at all about sitting on an elephant!  At the end of the day Boi was pooped!  After about 5 minutes in the car he conked out!  Dennis, Brooke, and I had a wonderful day with Boi and Zina.  It was so fun to see and experience American life through their eyes.   ~Cindy Wiens~

The Adventure Continues...

Boi is having a great time at the Beirne's and has been on many "outings".  He has been to Katie and Matt's school, to the Uecker girls school and today is visiting Brooke's class.  Yesterday I took him to Ryan Beasley's fire station in KCK for a quick visit and I mean quick.  After a short tour of the fire truck they were called out, so we got to see them in action.  Today, Elizabeth came for more filming and interviews. I hope to know the air date of her story today and will forward this information.  Boi is eating TONS!  I guess that is where he gets all of his energy.  I cannot believe the farewell party is in the planning, time has gone by SO fast.  Hope that everyone can come.

Abigail 

Outdoor Fun

Every day has been a new adventure of fun for Boi.  Both Zina and Boi have enjoyed the warmer weather and being outside.  Boi has a new bike (courtesy of Abby) with horn and bells (courtesy of Paul) that he can't wait to ride first thing he wakes up in the morning, 6:30am!!!  Also thanks to the neighbor girl, he has a motorized car to tool around and around and around the driveway.(we think he's even burning rubber!!)  There have been many kids to play with which he has enjoyed.  We also got to experience the wonderful peanut butter gravy again thanks to Messaua and family.  Tonight we went up to the Nationals Golf Course for the Cerner/First Hand fund raiser where Boi was treated like a king.  Especially enjoyable was the ride in the golf cart and finding souvenirs (golf balls) on the course.  We are very grateful to First Hand for helping us make this happen for this wonderful little boy.  Needless to say Boi is thriving.  He has several appointments this week at KU for followup because they all want to see him again.  Tammy

A Heartfelt Thank You

Yesterday, through our friend Yeah at Mali Rising Foundation, I received a call from Ambassador Diop, Mali Ambassador to the United States.  He asked me to thank ALL of you for the great care that Boi has received.  He is truly grateful for all that has been done for Boi and Zina.  So, a heartfelt thank you from Ambassador Diop and the people of Mali to you all!

Abigail

Let the Good Times Roll

The last couple of days have been great. Boi continues to make strides towards healing and I think is happy to be down to just a couple of medications. We have spent much time here just relaxing and letting Boi and the kids play. Thanks again to Doug Hagen and Abigail for the kite flying field trip. Abigail took Boi and Zina to Michael's school carnival yesterday afternoon and Boi came home fully armed with balloon helmet and sword, I love it. Boi has enjoyed playing outside in the yard and our girls have enjoyed having playtime with Boi. The turtle tent in the living room was a big hit. Tammy and Matt came by for a visit last night and Matt schooled Boi in the art of basketball. Boi helped make muffins this morning and ate his weight in cheesy eggs, the kiddo can eat. Moussa is bringing the kids over today for some more playtime, then the transition begins to the Neblock "compound" this evening. We have so loved having Boi and Zina here, can't wait to spend more time with them and will enjoy seeing Boi continue to heal.
 
The Ueckers      

Let's Go Fly a Kite

Boi is doing great since his release.  He and Zina spent the first night with us, the toys are out again, Boi played on the swing set and Zina helped the boys spread mulch.  Wednesday, I took them to Fritz's for lunch, the delivery of our food by train was a big hit.  Boi now has a train whistle, which he has mastered.  Last night they moved to a new "compound" for several days.  The transition was very smooth and I know they feel right at home with the Uecker's.  It did not take long for Boi to find all of the girl's toys.  Today I went with them to meet Doug Hagen at Swope Park.  He had his kite in tow, not just any kite,  some fancy kite boarding trainer kite.  Zina, Boi and I, Boi with some assistance as all of his 43 pounds would have been blown away, got to fly the kite.  We all had a blast and Zina laughed and smiled as much as I have seen since he arrived.   So, all is good, hope to be sharing fun stories from here on out!

Boi is Out!

   Boi is out!!  We loaded up the many gifts and carefully went through the discharge instructions and said our good bye's.  The PICU crew was very sad to see Boi go but know that while he is here, they are all welcome to visit anytime!  While KU PICU is not a place that I want to make a habit of visiting, Boi's care was phenomenal!!  Dr. Steve Martin really has a stellar crew and we cannot thank them enough!  But for the record, THANK YOU Dr. Martin, Dr. Una Scruggs, Kaleena, Stephanie, Alice, Dominique, Melissa and Rosa, Boi's day nurses.  Robert, Brett, Lacy and Nikki, Boi's night nurses.  Meghan, Physical Therapy, Colleen and Emily, Speech Therapy, and Emily, Music Therapy.  If I have missed anyone, I am sorry, know that we thank you too!

 

More Good News

Great News!  Boi is eating like crazy, walking the halls with his walker and even went for a wagon ride outside. Everyone is  very happy with his progress, tomorrow is the big day, Boi is getting discharged!!  So, less that 2 weeks after his surgery, the next part of Boi's journey.  Hopefully now some fun stuff.  More outside play, a Royals game, a trip to the Zoo and  whatever else Boi wants to do.  Life without the tumor....

A Great Day for Dad too

Boi seemed to be feeling back to his normal self a little today. He played games and catch with visitors today, was out of bed taking steps with the physical therapist and, most importantly, ate a helping and a half of mac and cheese without any trouble. Who doesn't like mac and cheese? Maybe he's back on track to get the feeding tube out and get out of the hospital.
It was a good day for Zina too. Sekou, Riley and I took Zina to Kansas Speedway to see some Indy cars and NASCAR trucks (thanks Abigail for the tickets!). I can't describe to you the look on Zina's face when we saw the first indy car fly by. His first question was, "are there people inside those cars?" After we converted it to metric, he could not believe that a car could go over 300km/hr. We had a great time, ate more American food, had Zina pick out a t-shirt for himself and Boi, and stayed until his eyes and ears could take in no more. I think the Air Force jet squadron fly-over topped it. Another good day and another day closer to getting Boi back on his feet and out of the hospital. Sleep well all.

Josh Uecker

Milestones Are Being Met

Boi is having a great day!  He had scrambled eggs for breakfast and mac and cheese for lunch!  He even requested salt, that yummy hospital food!  The physical therapist was by, Boi walked a few feet with the walker. He obviously does not want to put a lot of weight on the leg that the bone and tissue grafts came from, but that too will heal soon.  He is playing with all of his toys and carefully crafting art work that is proudly displayed on the room walls.  So, today was a big day, most of our milestones have been or are being met.  MAYBE, Boi can be released in a few days!  Josh was kind enough to spend several hours of his and Josie's wedding anniversary at the Kansas Speedway for IRL practice and the NASCAR trucks race, yes I was able to talk Mike out of these tickets, with Zina and Sekou. More on that from Josh tonight...

Small Step Back

Boi really tried this morning and was able to swallow some water but just could not get any food down.  So he went most of the day without practicing, he needed to go without food or water so they could "put him  to sleep" for a very short time to put the feeding tube back in.  They also gave him immunizations, no more shots, at least as far as he knows.  So tomorrow we will work on it again.  I know he can do it, remember this is the kid that ate a ribeye and twice baked potato with a GIANT tumor in his mouth.

He did have fun today though.  He is loving the basket of "loot" that the girls from the ENT clinic brought.  He played catch and went for a walk with his walker.  He is smiling and laughing at the Tom and Jerry cartoons.  He went outside and visited the IRL driver and his race car.

So, tomorrow...eating and drinking, I am sure!

Boi's Update

I love these little feet!

Abigail

Making Progress After a Rough Night

Dear all,

Just a short update on Boi. Last night ( Wednesday) was not easy for him; he pulled out his feeding tube and IV. The nurses put in a new IV but did not put in a new feeding tube. So, this morning the nurses told Zina and I to expect anything. Boi was awake when we went into his room at 8:45am. He was calm, and alert. The swelling is still going down and he was dealing with coughing out of the trac. tube, he handled that very well. During the day he was more responsive to the staff and us. They took the trac out and he even started to talk after that.

At one point I taught him how to raise and lower his bed and he was able to do that with out a hitch. Then I taught him how to change the channels on the T.V. and he was enjoying watching several different programs. At one point this afternoon Zina and I were sitting and kind of chilling and a commercial came on the T.V. It was a commercial about some pigeons flying around in an office building and bumping into the people in the building. All of a sudden we both heard Boi laughing at the commercial, He was chuckling, " heh, heh, heh, heheeh" he then was mumbling to himself. I couldn't hear what he was saying, but it was something along the line of, "What a funny thing that was".

All of the nurses were excited to come and hear Boi say "Hi" to them as well this afternoon. Just before I left tonight the nurse announced that they were going to do a swallow study about 5 or 5:30pm. If he could pass the swallow tests they were going to be looking at moving to a normal room and even dismissal from the hospital soon. Abigail and Tammy were in the room when I left so maybe they have news about the swallow study.
All for now,
Norm Baker (Translator)

Really, Boi had a great day, lots of things happened. The removal of the trach was a huge mile marker and he is progressing better that anyone could have predicted. It was a day of "therapy", respiratory, physical, speech, swallowing and music. By the time swallowing came along, Boi was "therapied" out. He gave it his best shot, making all the sounds requested, moving his tongue every way even did some talking but gave us all the I'm tired sign by snuggling in and pulling his covers over his head!

Tomorrow, another day with the girls in PICU who are treating him like a king! I am betting he will be eating and drinking by mid-day.
Abigail

 

Boi at Play in the Hospital

It was fun to see Boi and Zina again today. After I took his picture he wanted his disposable camera someone had given him and took pictures of his bear! He is one adorable smart boy!
Cindy

Bon Jovi Concert

Zina had a BLAST at the Bon Jovi concert!  The huge smile never left his face, he stood, clapped and had "the beat" throughout the whole show!  I would like to say, I can only imagine what he was thinking but, I cant!!

Abigail

Boi Comments

We wanted to share with you some of the comments we have received via email about Boi's story.

If you would like to post a comment to share you may do so by clicking on the comment link at the end of the blog.  A special thanks to everyone for their ongoing support.

"This is an amazingly triumphant story of love and will.  Thank you God for sending Boi all these angels."

"Such great news.  What a miracle.  Wait til the village sees him!"

"Wow, he is in our prayers."

"Thank you for the wonderful news, Abby."

"Unbeeeelieveable!!!!"

"Amazing story....I'm so happy that MMF has been able to change this boy's life positively forever."

"Blessings to you and everyone involved!!  I'm proud to be associated with such wonderful, caring people."

The Sparkle In His Eye Is Back!

Boi is doing great!  He is off the ventilator, has all of the drainage tubes out and has had the staples removed from his head.  The swelling is slowly going down and his medications are way down.  The sparkle in his eyes and his cute little personality are back and he says that he is not having any pain.  He is waving hi and good bye and giving lots of thumbs up!!  Zina has spent many hours at the hospital with him and is so comforting to Boi.  Zina is really doing a great job.  The boys and I will head down to KU Med soon, have a quick visit with Boi and then with Zina in tow, go to the Sprint Center for the Bon Jovi concert....I wish I could read their minds!!

Abigail